06/13/2016

#141. I have an 11 month old son who has suspected Dravet. Medicine isn't working...

Full question: I have an 11 month old son who has suspected Dravet. Medicine isnt working. how can I talk his doctors into trying the diet? i hear it works well with Dravet and can it even lower seizures after he comes off the diet?

Response: The ketogenic diet is very effective for Dravet syndrome and may even lead to life-long elimiation of seizures. There are several studies showing benefit. The following study compares ketogenic therapy with traditionsal anti-seizure medications.  You may google it to find the entire study:  Efficacy and tolerability of the ketogenic diet in Dravet syndrome - Comparison with various standard antiepileptic drug regimen. Although the study shows that ketogenic diet therapy has comparable seizure-control to anti-seizure drugs, its important to consider the long-term benefit of healing that ketogenic diet therapy can provide to the brain whereas drugs do not have this effect.